"Actor: Jonny Kennedy"

• The Boy Whose Skin Fell Off | DVD | (19/04/2010) from £N/A   |  Saving you £N/A (N/A%)   |  RRP £19.99

  Jonny Kennedy is a man with a lot to do. He's got just four months to move home befriend Nell McAndrew fly a plane visit Downing Street - and plan his own funeral. 36-year-old Jonny is an extraordinary man with a terrible condition - Dystrophic Epidermolysis Bullosa (EB) - which means his skin literally falls off at the slightest touch leaving his body covered in agonising sores and leading to a final fight against skin cancer. In 2003 Jonny decided to work with filmmaker Patrick Collerton to document his last months in an uplifting confounding and provocatively humorous story of a singular man.